Access to Healthcare for People with Learning Disabilities

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Published: 05 June 2007

Access to Healthcare for People with Learning Disabilities

Sir Jonathan Michael, former Chief Executive of Guy's and St Thomas' NHS Foundation Trust, will chair the independent Inquiry into access to healthcare for people with learning disabilities, Health Secretary Patricia Hewitt has announced.

The establishment of an independent inquiry follows Mencap's March 2007 report into the deaths of six people with learning disabilities.

The Health Secretary also announced the appointment of panel members to support Sir Jonathan:

· Chris Davies Consultant in Social Care/Lead Advisor Social Services Improvement Agency, Wales

· Len Fenwick Chief Executive, Newcastle upon Tyne Hospitals NHS Foundation Trust

· Prof. Sheila Hollins, President, Royal College of Psychiatrists

· Prof. Jim Mansell, Director, Tizard Centre, University of Kent

· Prof. John Moxham, Medical Director, King's College Hospital NHS Foundation Trust

· Joan Saddler Chair, Waltham Forest Primary Care Trust

The review will focus on the action needed to ensure adults and children with learning disabilities receive appropriate treatment, primarily in general acute health care and with reference to wider health services.

The review will also aim to learn lessons from the six cases highlighted by the Mencap report 'Death by Indifference'.

The Health Service Ombudsman for England, Ann Abraham, will be carrying out her own independent investigation of the cases. The inquiry will not be considering in detail any individual cases other than those set out in the Mencap report.

Sir Jonathan and the inquiry panel will shortly begin work and hold meetings with those involved to discuss the issues to be covered in the investigation.

To ensure the views of service users and carers are taken into consideration, a separate reference group will be established as a sounding board for the chair and panel members.

Sir Jonathan said

"I am pleased to have been asked to chair this important inquiry into access to appropriate healthcare for people with learning disabilities.

I look forward to working with both service users and providers to examine current practice and recent experience, highlight what lessons the NHS could learn and to identify where practice should be improved."

Independent inquiry Terms of Reference

· To identify action needed to ensure adults and children with learning disabilities receive appropriate treatment, primarily in general acute health care and with reference to wider health services. (The inquiry will not be conducting a detailed investigation of total provision across the NHS.)

· To learn lessons from the 6 cases highlighted by the Mencap report ‘Death by Indifference'

- the inquiry will not be considering in detail any individual cases other than those set out in the Mencap report

- The Health Service Ombudsman for England has agreed to conduct an independent investigation of each individual case.

The Ombudsman's investigations will run in parallel with the inquiry and, subject to the families' agreement, the Ombudsman's reports will be available to the inquiry panel to inform their conclusions and recommendations.

· To review existing national and international research on the issue. (NB. not to undertake original research)

· To take into account evidence and findings from the Disability Rights Commission Formal Investigation into Health Inequalities for people with learning disabilities and mental health problems

· To provide a stakeholder consultation to listen to people with learning disabilities, their families and carers, and take evidence from key stakeholder groups.

· To draw up conclusions from the evidence, make recommendations and report these to the Secretary of State.

Further information

Mencap's March 2007 report into the deaths of six people with learning disabilities - 'Death by Indifference'.

Good Practice guides and related documents

Health Service Ombudsman

DH - Learning disabilities

Learning disabilities white paper

Valuing People Support team

Survey of adults with learning difficulties in England 2003/4: Final and summary reports

Connects: the Mental Health and Learning Disabilities Portal

Scottish Consortium for Learning Disability

CSIP: Our initiatives: Learning disabilities